Narcolepsy, the scary truth and my experience

I dont remember much after that shot but I remember bits and pieces and have evidence to support it. Cause of the swine flu scare Amazon initiated a policy that for the time being if you have any type of flu symptons, do not come to work. Get a doctors note and you will be excused no discipline. Well I do have a letter from my doctor saying flu like symptoms from 2009 after the vaccine. Keep in mind I have never been sick in my life till this stupid thing.

Before this illness showed up I was working 60 hours a week at Amazon.com as a digital technology specialist, a job I proudly held since 2006. I was one of the first people to do Unbox, mp3s, amazon anytime upgrades, ps3, xbox, I was trained in like over 400 things for this company. What I remember and I cant remember the exact year it was either 2009 or 2010, I have the proof dont worry. I remember an email coming to the people on the floor about a new flu called swine flu H1N1 and the vaccines were being offered to people in the break room. At the time I had no desire to get a vaccine. I was perfectly healthy.

Then I started seeing articles in the newspaper about people locally dying from this flu. since I worked in a building with 900 people from the neighboring cities I finally opted to get this flu shot. I didnt know what to expect, i walked to the break room and a nurse was there waiting with a long needle, she pressed the needle into my arm straight to my tricep bicep meeting point. I was like wow that was fast, but I remember falling a couple times walking back to my work space. I talked to my area manager and said I feel sick, they told me its normal for that feeling after a vaccine. I wish I would have worried more after that my life completely changed…..

I dont remember much after that shot but I remember bits and pieces and have evidence to support it. Cause of the swine flu scare Amazon initiated a policy that for the time being if you have any type of flu symptons, do not come to work. Get a doctors note and you will be excused no discipline. Well I do have a letter from my doctor saying flu like symptoms from 2009 after the vaccine. Keep in mind I have never been sick in my life till this stupid thing.

I started getting sick for the first time in my life, over the next couple years I was in the emergency room for pneumonia 5 times, first one with my doctor was december 2010, others were with an emergency room doctor. My insurance was billed but I have nothing else from him.


Back in 2011 while working for Amazon.com i came down with an unknown illness, i was suddenly completely falling asleep numerous times a day. This was back in the middle of 2011, in July. I remember talking to my manager and taking some time off work cause I was so sleepy all the time. So I took an entire weekend of PTO and also about 3 days worth of UPT returned to work and tried to work again. I returned back to work that following friday, i talked to my manager again and scheduled a doctors appt. it was set for July 19th 2011, July 19th 2011 I went to my family doctor and he did a full examination on me.
He could see I was having a terrible time trying to not fall off the bed, so i laid back and he asked me questions.
 
We scheduled a sleep study for me. Unfortunately it wasnt until the 30th of August that same year. So My work put me on whats called FMLA. Its non payment, but i did have a lot of vacation hours and PTO left, so a lot of that was used in my time waiting for my sleep study.

I was able to stretch it and still manage to pay my bills while waiting. I had my sleep study in august 28th 2011, and My sleep doctor gave me my results on September 3rd saying I have narcolepsy.

I have a 4 minute sleep latency average, On my MSLT i fell asleep within a couple minutes after being told to fall asleep.

This is even after my PSG showing I had slept 8 hours. Best way to describe what I have is for you the reader to stay awake for days maybe even a week, no naps, no rest and try to function. Thats me 24/7, no matter how much I sleep I always look like I havent had sleep ever. I cant remember most things I do, a lot of what I do is automation. That is why i have the domain narcolepticnerd.com